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Winheld's World: My Life with Duchenne Muscular DystrophyWinheld's World chronicles my daily experiences in living with Duchenne muscular dystrophy, with which I was diagnosed when I was 4 1/2 years old, I have been in a motorized wheelchair since age 10. Now 29, I have been ventilator-dependent for nearly |
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Recent Blog Posts
Cambridge Who's Who Supports Artist Ivan P. Dobranic
on Feb 11, 2007 in Cambridge Registries Muscular Dystrophy CambridgeWhosWho.com whoswho Cambridge Who's Who "Cambridge Who's Who" Cambridge Who's Who Cambridge Registry Ivan P. Dobranic of Sarasota, Fl., has been selected as an Honorary Member of Cambridge Who's Who for his exceptional art talent. While stricken with the debilitating disease of Muscular Dystrophy, Ivan finds determination and spirit through Art New...
Frustration!
on Mar 10, 2009 in disabilities muscular dystrophy frustration brothers I have a brother who has a form of muscular dystrophy. He turned 51 in Dec. What frustrates me so much is that he won't accept the fact that he has a disability and do anything to help himself. For example, he can barely walk around now, and if he...
Symposium to look at genetic basis of exercise
on Mar 17, 2009 in California Claude Bouchard Entertainment Eric Hoffman Mark Olfert Maryland muscular dystrophy National Medical Center New Orleans San Diego Technology Tuomo Rankinen University of California at San Diego Washington, D.C. BETHESDA, Md. (Mar. 18, 2009) 'Adaptation to exercise' is a familiar phenomenon, even if the phrase is not: A sedentary person takes up jogging and can barely make it around the block. After jogging regularly for a few weeks, the person can jog a mil...
Persevere (an Interview with Lori Laws)
on Mar 19, 2009 in Lori Laws Muscular Dystrophy Persevere atheists Lori Laws of Persevere is one of the first kindred spirits I met online when I started blogging several months ago. She has a warmth and genuineness you can feel through her words and I hope you will visit Lori's blog and find a blessing there. Lori...
A splice of life
on Mar 26, 2009 in author biochemist Brandeis University Cambridge Daniel Pomeranz Krummel MRC Laboratory muscular dystrophy Technology United Kingdom X-ray Waltham, MA--In a new study this week in Nature, researchers at Brandeis University and the MRC Laboratory of Molecular Biology (Cambridge, U.K.) for the first time shed light on a crucial step in the complex process by which human genetic informatio...